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20. Courtney Hibbard: Trusting Your Instincts in a Cerebral Palsy Journey

20. Courtney Hibbard: Trusting Your Instincts in a Cerebral Palsy Journey

Mar 2026
28 min
Neurological
Cerebral Palsy / CBX1 Mutation
Toddler
Severe

Courtney Hibbard shares her journey raising her son Larry, diagnosed with cerebral palsy and the rare genetic mutation CBX1, and the importance of trusting your instincts as a parent.

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Listen: Episode 20 - Season 3

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About This Episode

In this episode of The Long Road Podcast, host Lisa McKelvey speaks with Courtney Hibbard about raising her son Larry, who was diagnosed with cerebral palsy and a rare genetic mutation known as CBX1. Courtney shares her experience of trusting her instincts as a mother when something felt wrong, navigating the diagnosis process, and managing her son's complex medical needs.

Larry is three years old, and Courtney opens up about the challenges of early childhood with a medically complex child, the importance of advocating for your child in the healthcare system, and the strength that comes from within when facing the unknown. Her story is a powerful reminder that parents know their children best and that trusting your instincts can make all the difference on the long road ahead.

Tags

cerebral palsy
genetic condition
rare disease
parent advocacy
family resilience

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